Thanks be to God through Jesus Christ our Lord!
So sorry that I have not blogged an update since Monday. Many of you follow me on twitter and you have been keeping up with my plethora of updates there, and your responses have brought encouragement to Sarah and I. I cannot thank you enough.
The nutshell, if I can do that, is this. Nicky has what is called Eosinophilic Esophagitis. There is a strong chance the eosinophil cells are also in his stomach and potentially his small intestine. He has been unable to keep most foods down for close to 3 months and unable to keep anything (anything) down since last Friday. He has been on an IV since Sunday evening (5 nights ago) and has been in the hospital since then with Sarah and some the best doctors we could hope for.
Yesterday, a feeding tube was inserted through his nose all the way to his small intestine because all 8 special formulas had been rejected orally. Which means thrown up. He rejected his first 0.5 ounce of formula #8 (which he had kept down the longest) through the feeding tube after about 20 minutes I believe. But the few ounces they gave him last night (directly to the intestine) has remained down.
Problem number 2: He aspirates nearly every time he swallows food or liquid, which means it goes into his lungs. He also aspirated some of the bile that he was expelling from his intestines.
Problem 3. Allergies. He has a level 3 allergy to gluten. A level 4 allergy to soy, wheat and barley and a level 5 allergy to eggs, milk and all nuts. Sarah had a salad last night with nuts on it, kiss Nicky's head an hour later and he had a reaction. A level 5 allergy involves discoloration and anaphylactic shock.
That's where we are. We can pray specifically for his healing now. Thank you for joining us in praying for our little baby boy. Sarah and I feel strongly that God wants me to stay on the road for now and continue to sing His praises with you. So I find myself in Bakersfield, California, but my heart is with my family and I pray for Nicky's healing, my wife's strength and Daniel's peace and patience as he stays with dear friends.
Community, praying for us and caring for us, is essential, we can't do this alone. And when we feel alone, we remember Emmanuel. God with us.