What an intense month...and a half this has been, since I last blogged. I will try to be brief yet thorough. Nicky, who has been eating through a tube (nose to intestine) since Sept 17th, coughed it up last Saturday after 6 weeks and Sarah rushed him to the hospital for what was the start of 10 days of continuing to try to fix him. I won't go into great detail, as I know it, because I'm sure I'll say something not medically accurate and don't want to debate those details, so here are the basic essentials.
People, yourselves included, have been praying for Nicky's complete healing from EE and EG (refer to earlier posts and tweets for more details) and his other issues which include Silent Aspiration (breathing food, drink, even vomit into the lungs without a physical response like chocking or gagging), Delayed/Empty Gut Syndrome (a very slow digestive process where new food was being mixed with old food that hadn't left the stomach yet) and severe allergies to Soy, Wheat, Barley, Dairy, Eggs, Nuts and something else major I can't remember right now.
The first couple days there, Nicky was biopsied again in his throat and stomach. His EO count before was +100 per biopsy sample (+25 is considered extreme). One thing I know about EOs is that once the body creates them, they don't go away. They are painful and damaging and steroids help stifle the pain. It's considered an incurable disease. He EO count as of now is ZERO! "You give and take away" has an entirely new meaning to me now. Thank You, Author of Life, for healing my son of EE and EG! One doctor said, "I guess...you can say...Nicky no longer has EE." and then just walked out. :)
Next, the doctors said he either had a perforation between his esophagus and airway that was shielded by some sort of skin flap (a cleft that kept them from seeing it the other 3 times they scoped him) OR if not, then he must have a mass at the base of the brain called Arnold Chiari Malformation that affects his swallowing. This would have to be removed surgically and it's not an easy operation. Needless to say, we were praying for a perforation. Who prays for a hole in their kid's esophagus!? us.
So they put him under Friday (5 days ago) to scope him to find a perforation, if not, they'd do an MRI while he was out to check for Arnold Chiari. They found a perforation!!! And the doctor performing the procedure had recently engineered a medical gel to temporarily seal it. He applied it immediately. No MRI needed.
Yesterday was the Swallowing Test to see if the gel worked. He passed! Swallowed everything, aspirated nothing! Not only that, he didn't even Silently Aspirate, which evidently was not something the gel could have fixed, that was a neurologically issue (the brain telling the throat how to swallow) Sarah said, "It is so much fun watching these brilliant doctors scratch their heads!" God finished what that amazing gel couldn't. Sarah's witness to the hospital staff is one of grace, trust, wisdom, faith and peace. And otherworldly stamina. Your prayers and God's strong arm and loving kindness have sustained her! Thank you!
Once Nicky gets over the cold I gave him, he'll get stitched up permanently. The delayed gut syndrome is something the doctors believe he could grow out of. We have another allergy panel test scheduled for the 19th of November I think, and I would not be surprised if God restores his ability to eat whatever he wants! That's what we pray for. Then he needs to learn, with the help of a therapist, how to eat again. Starting over with a bottle. He's on a GJ tube in the meanwhile.
BE ENCOURAGED: GOD IS ANSWERING OUR PRAYERS AND PERFORMING UNDENIABLE MIRACLES!
Yesterday at noon, Nicky came home. :)