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Wednesday, November 3, 2010

I believe in Miracles

What an intense month...and a half this has been, since I last blogged. I will try to be brief yet thorough. Nicky, who has been eating through a tube (nose to intestine) since Sept 17th, coughed it up last Saturday after 6 weeks and Sarah rushed him to the hospital for what was the start of 10 days of continuing to try to fix him. I won't go into great detail, as I know it, because I'm sure I'll say something not medically accurate and don't want to debate those details, so here are the basic essentials.

People, yourselves included, have been praying for Nicky's complete healing from EE and EG (refer to earlier posts and tweets for more details) and his other issues which include Silent Aspiration (breathing food, drink, even vomit into the lungs without a physical response like chocking or gagging), Delayed/Empty Gut Syndrome (a very slow digestive process where new food was being mixed with old food that hadn't left the stomach yet) and severe allergies to Soy, Wheat, Barley, Dairy, Eggs, Nuts and something else major I can't remember right now.

MIRACLE #1
The first couple days there, Nicky was biopsied again in his throat and stomach. His EO count before was +100 per biopsy sample (+25 is considered extreme). One thing I know about EOs is that once the body creates them, they don't go away. They are painful and damaging and steroids help stifle the pain. It's considered an incurable disease. He EO count as of now is ZERO! "You give and take away" has an entirely new meaning to me now. Thank You, Author of Life, for healing my son of EE and EG! One doctor said, "I guess...you can say...Nicky no longer has EE." and then just walked out. :)

MIRACLE #2
Next, the doctors said he either had a perforation between his esophagus and airway that was shielded by some sort of skin flap (a cleft that kept them from seeing it the other 3 times they scoped him) OR if not, then he must have a mass at the base of the brain called Arnold Chiari Malformation that affects his swallowing. This would have to be removed surgically and it's not an easy operation. Needless to say, we were praying for a perforation. Who prays for a hole in their kid's esophagus!? us.

So they put him under Friday (5 days ago) to scope him to find a perforation, if not, they'd do an MRI while he was out to check for Arnold Chiari. They found a perforation!!! And the doctor performing the procedure had recently engineered a medical gel to temporarily seal it. He applied it immediately. No MRI needed.

Yesterday was the Swallowing Test to see if the gel worked. He passed! Swallowed everything, aspirated nothing! Not only that, he didn't even Silently Aspirate, which evidently was not something the gel could have fixed, that was a neurologically issue (the brain telling the throat how to swallow) Sarah said, "It is so much fun watching these brilliant doctors scratch their heads!" God finished what that amazing gel couldn't. Sarah's witness to the hospital staff is one of grace, trust, wisdom, faith and peace. And otherworldly stamina. Your prayers and God's strong arm and loving kindness have sustained her! Thank you!

Once Nicky gets over the cold I gave him, he'll get stitched up permanently. The delayed gut syndrome is something the doctors believe he could grow out of. We have another allergy panel test scheduled for the 19th of November I think, and I would not be surprised if God restores his ability to eat whatever he wants! That's what we pray for. Then he needs to learn, with the help of a therapist, how to eat again. Starting over with a bottle. He's on a GJ tube in the meanwhile.

BE ENCOURAGED: GOD IS ANSWERING OUR PRAYERS AND PERFORMING UNDENIABLE MIRACLES!

Yesterday at noon, Nicky came home. :)

20 comments:

McCoy said...

Praise God...as a Dad, I'm fighting back some tears right now...

baylormum said...

Oh, Aaron!! I have goosebumps! And a few tears! I know you & Sarah are glad to have everyone under the same roof again, too!

I pray for Nicky's continued healing with the allergies. And with learning to eat & swallow all over again. That the GJ tube will be hassle-free until it can be permanently removed. He is the true rock star in your family right now! And the fact that you have family right there that can help out.

Thanks for the update (in more than 140 characters at a time). "baylormum"

Melody Joy King said...

THANK YOU LORD!!! :0) :0) :0)

Jake T. said...

God is good!

Debby said...

Thanks for the update, Aaron. It's so encouraging to hear of God still working miracles today! So very, very happy for you all! Will continue to pray that Nicky's healing is complete.

Harvestmom said...

WOW!!! I've been praying!!! What a miracle!! I was an Neonatal Intensive Care nurse at one time in my life and so have been looking for an update with details!! The verse that comes to mind is Ephesians 3:
"20 Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, 21 to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen." What an EXCEEDINGLY ABUNDANT answer to prayer!!! Hugs to the little guy from us!!

Myrna said...

I wish I were full of wonderful words to say, but all that my heart can say is Praise God!
He truly is amazing♥

Tunafish said...

Wow =) Praise GOD! That's so awesome and encouraging! All I can really say is praise GOD! Jesus loves you! =)

Kim V. said...

Praise God from whom all blessing flow! What a wonderful answer to prayer for little Nicky. I pray for the continued blessing of healing.

Crystal said...

Awesome...Awesome...Awesome...God is so very awesome. Standing and believing for full and complete recovery!

Aislynn said...

YAY!!! That is amazing!!! I'm incredibly happy for you and your family. AMEN!

Laurie Mohr said...

I just want to sob with joy for your little boy and your family! Thank you for sharing your struggles AND your blessings with us.

Mary said...

Wow..God is so good!

Emily said...

Praise God!! I believe in miracles, too! I pray for y'all a lot and am so glad to hear that God is answering our prayers. Thanks for the update! I will continue to pray for you all!! God continue to bless your family :)

Laura said...

Awesome News!!!

ruta93 said...

Praising God for His Awesome Goodness. Tears of Joy for you and your family.

The Dickson Family said...

Praise the Lord! I believe in miracles! I will continue to pray for your little man and your family!

BeccaG64 said...

Hallelujah, Hallelujah, Hallelujah!!!!!!!!!!!!!!!! How awesome is the Lord!!!! Praise You Jesus!!

Angela said...

I'm all for giving praise to God for helping your child. God is great! The EOs are only there if there is an allergen they are responding to. They can go away. You can get a zero EO result with EE if you avoid the foods that trigger it. Introduce the foods again and your EO count will go back up. It's more like remission than being cured. Most kids will get a clean scope on an elemental diet. Eventually you'll have to trial those foods back in. I'll pray that God has indeed cured your son and those foods don't affect his EO count!! I know all this because my son has EE. It's amazing how much you learn so quickly.

Aaron Shust said...

Angela, you are correct from what I gather in everything you say. However, Nicky's case is a bit different in that his EOs had nothing to do with his allergies, but with the infections that have brewed in his lungs for the past two years due to his constant aspiration. The doctors likened it to how the body would create EOs to battle cancer. Those doctors, here at Children's Hospital in Pittsburgh, all agree that EO's never go away.

I didn't want to debate, but I also didn't wanted to censor your comment. However it demanded a response. God gets the glory for this one.