Tuesday, December 7, 2010

No More Than I Can Handle...

...With the grace of God that sustains and a peace that passes understanding of course. But I wonder how close I'm getting. I decided to blog this cause I didn't know how I'd fit this update in 140 characters: the last couple days have been a whirlwind.

Wednesday 12/1: Sarah takes Nicky back to Children's Hospital after reported discomfort.

Thursday 12/2: Nicky receives his 8th feeding tube, his 3rd GJ (a replacement) and my mom calls and tells me that my 90 year old Grandma has until Monday to live, if that.

Friday 12/3: Nicky is discharged first thing in the morning and cleared to travel with us to Georgia to say our goodbyes to Grandma. We leave home at 1:40pm and arrive at 12:40 in the morning on...

Saturday 12/4: Nicky turns 2. Grandma hangs on and bounces between lucidity and living in the past. She's bedridden, can hardly see, hear or move but is still the same, sweet, little lady we all love. Many hymns sung and "Jesus, There's Just Something About That Name" sung countless times. Her obvious favorite.

Sunday 12/5: More time with Grandma. Nicky gets a fever. Steelers win.

Monday 12/6: Nicky's fever won't diminish with Tylenol, hovers around 102. We say our tearful goodbyes to a lady about to move into a pimp mansion and have dinner with her Savior and her God, then we hop into the car suddenly at 9:41PM and begin to drive back to Pittsburgh, checking Nicky's temp ever hour. If he hits 103.5 and Tylenol doesn't lower it, we have to stop at nearest ER.

Tuesday 12/7: at 2am maybe, Nicky hits 103.5. Tylenol works and we keep driving. My angel wife, Sarah, stays awake to help me stay awake (along with the prayers of friends and 5 hour energy drinks. blah) I drop off Sarah and Nicky at Children's hospital at 10am, drop of Daniel at friends at 11 and go home to go to sleep. Wake up 4:30pm. Call Sarah for update:

Nicky has severe Pneumonia, they can't stabilize him enough to move him out of the ER and into his room. Heart rate is too high, BP is too low. Fever is still at 104.

My day has been much better than Job's worst, but I'll still say it. "The Lord gives and the Lord takes away. Blessed be the Name of the Lord."

Dear Lord,
Give Rest to my Grandmother.
Give Your Healing to my boy.
Dona nobis pacem.
In Jesus' Name.


Aaron Shust said...

oh yeah, and during all of that I started recording. Sent 8 songs into Ed Cash and drums were recorded on the new record yesterday and today! It's been an outlet quite honestly and I'm so thankful I can be with my family during the recording of it! amazing.

Lindab said...

We can handle everything...just different ways at different times. You did absolutely the right things. Nicky had the pneumonia before you left - it showed up differently later. You got him back to the doctors and nurses who know him. Your grandmother will be with you, too. I will pray for the doctors knowledge, your little boy's strength - just keep telling him how much you love him. Do you have a cd player in the room to play good music while he sleeps? Do it, please. He'll hear it all night long. And you and your wife need to keep up your strength - it's no time no worry about calories. I feel strong about him - he's in the right place being looked after by the strongest of people, including God. Of this I am sure.

Anonymous said...


I will definitely be praying for you and your family as you walk through this. Remember that even when you walk through the valley of the shadow of death, you have nothing to fear because the Lord is right you, and He will never leave you nor forsake you.

God bless,


loveishere said...

I'm sorry little Nicky is hurting. Just said a prayer for him, your family, and your grandmother. Cannot imagine you and your wifes pain. God has a plan. Rest in knowing that. - Lauren

♥Bleah♥Briann♥ said...

I'm so sorry.
I just found your blog today through a friend who asked all of his followers to pray for you. I'm a huge fan, and my heart is breaking for you. It's hard sometimes to sit back and realize that you are, indeed, a real person, who faces real problems just like the rest of us. It's humbeling....
God Bless you Aaron.

-Bleah Briann

Debbie said...

What a stressful time for you and your family. I will pray for God's grace and comfort for you all.

Kelly Beaty said...

All afternoon, I had My Savior, My God on repeat. You and your family were on my mind and heart. Now I know why. Praying for all of you.

Josh said...

Aaron, just want to let you know that we are in constant prayer for you guys. I so wish there was more that we could do for you guys. If there is anything we will do it in a heartbeat. Please give our love to everyone and we will continue to pray! Love you guys, Josh and Nancy

Shaun Groves said...

Praying for you, friend, and for your family. Tomorrow I'll ask more to join us too.



Kelley said...

I am truly in awe of how God has given you and your family such peace. We pray for little Nicky and for God to bring another miracle of healing. Grace and Peace! Kelley Wiggins

Aubrey B. said...

I've been praying for Nicky, as well as for you and Sarah, all afternoon. And I've asked everyone I know to pray with me.

Melody Joy King said...

I am sorry for the pain and difficulty you and your family are facing. Praying for all of you right now.

Miranda Bryant said...

Oh Aaron! This is one of those times that I have nothing to say, other than..I am praying. He is strong and mighty.

Love you guys!

suchimpulse said...

I'm praying for Nicky, and your Gramma, and you and Sarah and Daniel. I liked when you said you and Sarah are just taking care of your boys, but that they belong to God. We all belong to God, just have to remember that sometimes.

Crystal B. Brewer said...

When a little one hurts, my heart breaks. My husband and I are approaching the two year anniversary of our stillborn twins. These little ones from Jesus are such a blessing. I pray that God sends his angels to protect Nicky tonight. Our prayers are with you and Sarah.

Crystal crystalbrewer.blogspot.com

Aaron Shust said...

Hey, a respected friend lovingly pointed out that my use of the word "pimp" referring to a Heavenly mansion wasn't the best choice in adjective. He's right. I meant to describe my Grandmother's future mansion as "MAGNIFICENT BEYOND IMAGINATION" and was thinking more along the lines of "pimp my ride" (meaning "retrofit my vehicle")

However, the word PIMP and anything pertaining to Heaven have nothing to do with each other.

Please forgive.

Tunafish said...

All I can say is I'm praying an I know that doesn't seem like much from some random guy on the internet but I hope in some way it's comforting =) Jesus loves you! and always has our best interests in mind

Mark said...

Mary and I and our church family are praying for little Nicky, for Sarah and you and Daniel, for Grandma, and your Dad & Mom. God is able and He is faithful! Our family is holding you up in their prayers.
Love, Mark & Mary Pitroff

Anonymous said...

"we" cannot handle frailty of life . . . but God does. We've been where you have, and know the weariness of it, and know that God's people will hold you up thru this and God's will will be done and He will bring you through shinning like gold.

Will continue to pray for His peace that passes all understanding. God loves Nicky more than you can imagine.

Kim V. said...

I admire your spirit of peace. I am praying for Nicky that God will quickly heal his body and protect him from illness for the rest of the winter. Blessings,

Ann said...

Your friends from the Antelope Valley (Gracefest) are praying for your little boy and your family. "My Saviour, My God" is a song that helped me out of a depression - it speaks to the unknowable nature of God, then breaks into the overwhelming joy of His presence...I also call it my "Nayeli" song because the joy of it was like the joy I felt at my first granddaughter's birth (song and baby came at the same time)...Our God is the great healer and the great comforter. Bless you, Aaron.

hearditatthegrapevine@hotmail.com said...

All for the love of God and the love God plants inside of us from HIM and for others is beyond what anything in the world has to offer...I love you all so much and love God and love how He teaches us to love each other so intensively...Love hellos and struggle to say goodbye that I did to my mom and older sister this year! and will see them again when the dead in Christ rises! We all love our families and thank God for the time God gives us with them...so blessed having held our daughters and watched them grow-up learning about the LORD and getting saved and now have babies of their own...We thank you LORD for the gift of LIFE & as believers eternal life and thank you for the LOVE that lasts forever and pray for your healing hands to help our loved ones heal and stay healthy and grow in the light of YOUR LOVE as YOUR CHILDREN in Jesus name Amen!!! Blessings! prayers always!DJH

Patty said...

Heavenly Father,
In the Name of our King Jesus we come to you on behalf of Aaron for his son Nicky. We don't know the status of Nicky right now, but you do Lord. We come in agreement that if Nicky still has any infection that the infection will die in Jesus name, that the healing light of Jesus Christ shine on Nicky. That any water in his lungs would clear up. Fever will be broken in Jesus Name, and not return. For by Your stripes we are healed. As the enemy tries to rob, kill still and destroy that any assignment against Aaron and his family be broken in Jesus Name. Oh Lord be merciful and bring this child into perfect health. Wash Aaron and his wife with pure and perfect peace that only comes from you. Thank you Heavenly Father in Jesus Name. Amen.
Aaron, you are a worshiper of the most high, who brings others to that place. Continue to worship with heart and praise! What victory there is in our lives in that. Bless you.

Laura said...

Praying for your son. Hope things have improved since you posted this.

John and Carrie said...

Hi Aaron,
We have mutual friends, Jason & Amy Franklin. They asked me to look at your blog b/c some of the things your son is going through is very similar to what my daughter went through. My daughter has severe reflux, aspiration--which after 3 years they finally discovered she had a laryngeal cleft; delay of stomach emptying, chronic lung disease from the aspiration; food allergy; and now they think she has esophageal spasms. Her laryngeal cleft repair completely fixed her aspiration problems.
My daughter has been through a lot medically in her 4 years of life, but God has truly carried us through it all. It has been amazing to see God's hands in bringing us to the right doctors at the right times. It is not easy when your child suffers, but we are closer to our Lord and a closer family b/c of it all. Cry out to the Healer who hears our cries. He will carry you through.
Here is an article that Johns Hopkins wrote on my daughter: http://www.hopkinschildrens.org/when-reflux-is-more-than-reflux.aspx
If you want to contact me for more info, mutual understanding since our children have similar trials, the Franklins can get us in touch!

JC said...

Sometimes I Hear Rhymes

This came to me as I read your post.

Keeping our eyes on Jesus is the answer to them all.

He's promised to never leave us and to never let us fall.

It's the strength of his right hand that always amazes me.

I can hardly imagine what it took for him to hang on that tree.

You can do this every step of the way.

God will meet you in the trails each and everyday.

JC said...

Sometimes I Hear Rhymes

This came to me as I read your post.

Keeping our eyes on Jesus is the answer to them all.

He's promised to never leave us and to never let us fall.

It's the strength of his right hand that always amazes me.

I can hardly imagine what it took for him to hang on that tree.

You can do this every step of the way.

God will meet you in the trails each and everyday.

Annie Chellah.T said...

God be with you!! Praying for you!!!

Deedee said...

Aaron and Sarah,
Your Chicago "family" is praying for you all and continue to lift you up the the Father who knows you, loves you and provides healing and strength.

the Freemires

Melody Joy King said...

Dear Aaron,
Happy New Year to you and your family. It is so wonderful to hear that Nicky is doing so much better! My 16 year old brother Peter was life-flighted to a large hospital in Danville, PA on Christmas night with stroke like symptoms. The Dr.s thought he may even have blood clots on his brain. This came about out of the blue during Christmas dinner. He was in the hospital for 6 days, but we've had to take him back to the ER twice since then. He is a healthy, healthy, strong kid that never gets sick, so this has been a huge shock for us. They are saying this is a complex migraine issue and treating it as such. My parents in I were in the ER with him til 2:30am this morning, but they stabalized him, we brought him home, and he had a great day today. Praise God! We are praying for a good night as well and continued progress.
That being said, we have had a lot of people praying, and several who have offered advice and counsel on what they think the source of the problem could be. I never realized 'til now how annoying that can be. I know I sent you a message a while back with some thoughts and suggestions I had about Nicky's condition, and I just wanted to apologize for that. I will continue to hold your family up in prayer that Nicky will continue to make good progress. :0) Blessings to you and yours Brother, Love in Christ, Melody Joy