It's pretty incredible being in the second full day home with 5 in the house! Michael is doing great, on a wonderful schedule and up just one time in the night. He's getting his rest and so is Mommy. The boys are thrilled to have their Mommy and new little brother home and, quite frankly, so am I. Forgive the lack of blogging the past two days. The blog was very therapeutic for me during the past week and I will continue to blog about things in my life that move me, whether it pertains to Michael or any other members of my family, friends or Road experiences. I don't feel led to start a "Down Syndrome Blog", although I'm sure I will reference some of the many resources you all brought to my attention. Michael is now a part of our lives. Down Syndrome is now a part of our lives but I don't think it will define us.
We have an incredible support base through our church, very near and dear friends who help us through life, whether it's being there for Sarah when I'm on the road, helping us with Nicky and his health and allergy issues and I know they will continue to be there for us with Michael. Pittsburgh seems to be a wonderful place to live when you have a child with DS and one of my dear friends in Christian Music is Jeremy Theissen, the drummer from Downhere, who I will be touring with again this Spring, has a 3 year old boy, Liam, with Down Syndrome. We will have much to talk about.
We're not worried. We're not scared. We have no reason to fear. We have nothing but love and joy to experience through the lives of our three children.
Thank you all for your generous offers of practical assistance to our family. One day, and that day may never come, we may call in those favors! In the meanwhile, I pray you've found some encouragement from our recent journey, I know we couldn't have journeyed the way we did without our cyber-community loving us with the love of our Lord!
Thank you again so much!
What's on our hearts: Michael's Complete AV Canal Septal Defect will require the heart surgery that so many of you know about. If you don't know, sometime in the next few months, he'll have to have that surgery. We won't know when until his heart fails. We're praying for peace and wisdom.